This guest post was written by Caroline McGraw. She is the Program Director for L’Arche Washington, DC Arlington homes, a non-profit, faith-based organization that creates homes for people with and without intellectual disabilities.Caroline is also the older sister to a brother who has autism. She has just participated in the most recent Best of the Best and I am very excited to share her story.
This post is part of the series titled “When One Door Closes, Another Door Opens,” where individuals reveal how their paths have changed since a child or a sibling with special needs has entered their lives. This is a letter written by Caroline to her parents and is a fabulous example of how siblings can benefit, in ways that parents can not initially imagine, by having a brother or sister with a special need.~ Danette
An open letter to parents: On what your children remember
Dear Mom and Dad,
As your 28th wedding anniversary approaches, I’d like to tell you what I remember about how you’ve raised Willie, and what I’ve learned by watching you.
My first memory is of a diagnostic center, the playroom where I waited as Mom and Willie met with the doctors. When you came out, Mom, you knelt down to hold me, and you were crying. I didn’t know what was happening, but I knew that something was wrong. I realized for the first time in my life that you were vulnerable, and that you needed to hold me. Yet what strikes me now is not the sadness of that day, but the beauty of your spirit. Mom, you reached out for me. You drew me in at a time when you must have wanted to push everyone away.
Likewise, you reach continually out on Willie’s behalf, seeking therapies and doctors and medications and activities and services for him. You encourage him in his interests, yet you also allow him the space he needs for himself, to be himself. You have taught me how to count his small victories, to see the steps of progress he makes as miracles.
Dad, I remember how many times you took Willie with you on work trips, on errands to Costco, to Edie’s for haircuts. You’ve made sure to include him in all aspects of your life. And I have never seen you act self-conscious or embarrassed by his behaviors, strange and frightening though they have been. You model a relaxed, take-it-as-it comes attitude for me and for others, and your corny humor dissipates many awkward moments.
In the times when Willie struggled with violent outbursts and self-injurious behavior, you took on bruises and cuts. You made sure to protect Willie from himself when necessary, and you’ve protected us as well. Rarely did you let the pain of keeping our family together show through. I can’t imagine what that’s cost you. You continue to keep the faith as Willie’s condition improves, and that patient trust is bearing fruit.
Of course, these things do not always come easily for either of you. I have seen you struggle. I have seen you doubt your decisions. I have walked with you into the places where there are no ‘right’ choices, only choices less terrible than others. I have sat with you on the floor of our upstairs hallway, none of us knowing what to do or how to carry on.
We have been totally at a loss, and yet we have never been ‘lost,’ because we have been together.
I love you, and I am amazed by you every day.
Caroline McGraw can be reached at: