Why We Need to Advocate Against Our Children’s Labels

advocating autism diagnosis

One of the quieter moments in the much maligned Star Wars movie, The Phantom Menace, is the first conversation between Padme and Anakin. Listening to him talking about his past, she suddenly exclaims in shock, “You’re a slave?”, to which Anakin indignantly replies, “I’m a person and my name is Anakin”. That understated moment highlights [...]

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What Your Child’s Pediatrician May Be Missing!

developmental delays

Early detection of a developmental delay is an art. Small children don’t always respond on command.  Pediatricians do the best job they can in the limited time they have with patients, but getting a detailed assessment from a parent’s memory about their child’s progress is tricky (Committee on Children With Disabilities).  It is not wise for a parent [...]

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Use these Steps to Tease Apart Discipline or Sensory Issues

discipline-sensory

Is this behavior a discipline issue or a sensory one? This is the dilemma that so many parents face after learning that their child has a sensory processing disorder or difference. The short answer is: If the behavior does not respond to disciplinary or behavioral techniques, think sensory. Better yet, first analyze behaviors from a [...]

Million Dollar Question: Sensory or Behavior?

temper-tantrum

Isn’t that the million dollar question when dealing with a child with special needs? Is your child on the autism spectrum? Does your child have sensory processing disorder or both? Does your child throw a tantrum when they don’t get their way? Or is it bad enough that they hit, bite, pinch and kick? Toddler [...]

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Shift Your Focus During a Tantrum: God Spoke to Me

God-Speaks

It was a beautiful day as I cheerily loaded my kids in the car to take my youngest son, Jake, to Occupational Therapy.  He eagerly climbed his 7-year-old body into his car seat.  Jake LOVED to “go see Amy,” his therapist,  because there is an indoor gym area, lots of fun swings and large motor [...]

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Adjust Expectations and Retain Hope when Getting a Diagnosis

hope-diagnosis

When I was a parent new to an autism diagnosis, I went through a lot of different emotions. Some of them were useful, and some of them were not. Among the useful ones were relief: at least I knew what it was, why he had missed every infant milestone, why he didn’t speak much. Then [...]

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Learn to Manage the Diagnosis

manage-diagnosis

When someone in your house is diagnosed with ADHD or any other special need, there are suddenly many things that make sense.  There can also suddenly be a feeling of overwhelm and helplessness over what to do now that you know.  Hopefully you were lucky and found a care provider who is experienced with, and [...]

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Taking Care of You…Avoiding Caregiver Burnout

caregiver-burnout

Caregiver Stress Syndrome (CSS) is a syndrome found in caregivers involving pathological, morbid changes in physiological and psychological function. This syndrome can be the result of acute or chronic stress, directly as a result of caregiving activities. The Reality of Caregiver Burnout Caregiver burnout and fatigue are very real.  Many parents struggle through this overwhelming [...]

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Have I Lost My Autism Diagnosis?

KiteBoy

I am a 57-year-old autistic woman who can navigate the world in a way that surprises some people when they find out I have autism. My teen years were spent in an institution, because people did not know what to do with my “behaviors” and me. Today I am a self-employed author, speaker, consultant and [...]

Parents, Put a Plan in Place to Deal with Your Isolation

isolation

Isolation or the perception of feeling isolated is common with parents of children with special needs. “I feel so alone” has probably been thought or said out loud millions of times just in the last week. But when I looked up the definition of the word isolation, what I found was this: the act of [...]

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