Why We Need to Advocate Against Our Children’s Labels

advocating autism diagnosis

One of the quieter moments in the much maligned Star Wars movie, The Phantom Menace, is the first conversation between Padme and Anakin. Listening to him talking about his past, she suddenly exclaims in shock, “You’re a slave?”, to which Anakin indignantly replies, “I’m a person and my name is Anakin”. That understated moment highlights [...]

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What Your Child’s Pediatrician May Be Missing!

developmental delays

Early detection of a developmental delay is an art. Small children don’t always respond on command.  Pediatricians do the best job they can in the limited time they have with patients, but getting a detailed assessment from a parent’s memory about their child’s progress is tricky (Committee on Children With Disabilities).  It is not wise for a parent [...]

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Adjust Expectations and Retain Hope when Getting a Diagnosis

hope-diagnosis

When I was a parent new to an autism diagnosis, I went through a lot of different emotions. Some of them were useful, and some of them were not. Among the useful ones were relief: at least I knew what it was, why he had missed every infant milestone, why he didn’t speak much. Then [...]

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Learn to Manage the Diagnosis

manage-diagnosis

When someone in your house is diagnosed with ADHD or any other special need, there are suddenly many things that make sense.  There can also suddenly be a feeling of overwhelm and helplessness over what to do now that you know.  Hopefully you were lucky and found a care provider who is experienced with, and [...]

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Have I Lost My Autism Diagnosis?

KiteBoy

I am a 57-year-old autistic woman who can navigate the world in a way that surprises some people when they find out I have autism. My teen years were spent in an institution, because people did not know what to do with my “behaviors” and me. Today I am a self-employed author, speaker, consultant and [...]

Be the Change

be-the-change

“Be the change that you wish to see in the world.” – Mahatma Gandi Too often we are quick to point the finger blaming others. “Why can’t those people understand my situation? Can’t they try walking in my shoes?” We as parents of special needs children tend to be less tolerant of our church families [...]

ADHD Awareness Every Day

awareness-adhd

September was ADHD awareness month and the week of October 14th is ADHD Awareness week.  Most organizations dealing with ADHD look to spend this time getting information out to the public to help spread awareness of the disorder and to curb myths and replace them with truths.  I would like to take this opportunity to [...]

A Process of Grieving

grieving

“As parents, we develop hopes and dreams about who our baby will be in the world and how we will be as parents.” – Kristen Reinsberg, MS, LMFT Normalcy. Does it exist? Society has tried to coin the term. We try to squeeze our kids into society’s “norms” pretending that everything is normal. Raising a [...]

To Tell the Truth About Special Needs

truth

To tell or not to tell, that is the question. Like Hamlet, we have a choice. As a parent, when you get the diagnosis of autism or any other special need applied to our child, do you tell your child that he or she has this diagnosis? Talking About the Diagnosis My son, Chris, was [...]

The Journey of Acceptance and Self-Advocacy

acceptance

I have always known I was different from others; ever since I was a little girl I knew that I had special needs. I knew that I went to therapy, I knew that I had a special education teacher at school who helped me, and I knew that some things were harder for me than [...]

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