Taking a Break, Giving Breaks…Respite Care

Take Care of Yourself

The summer is in full swing and that means that children have been home 24/7. As caregivers, it is important to be sure to take a break OFTEN enough to maintain a healthy balance between caregiving and personal needs. Many times, people want to help, but they don’t know what to do that will help. […]

Lessons from A Tragedy: The Death of Alex Spourdalakis

Alex Spourdalakis

My heart broke when I read the tragic story of Alex Spourdalakis, the fourteen-year-old child with autism and severe behavioural challenges killed by his mother and godmother as part of a murder/double-suicide pact (Zennie, M.). The two women survived the suicide attempt after being discovered by authorities who were contacted after Alex’s dad tried repeatedly […]

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Taking Care of You…Avoiding Caregiver Burnout


Caregiver Stress Syndrome (CSS) is a syndrome found in caregivers involving pathological, morbid changes in physiological and psychological function. This syndrome can be the result of acute or chronic stress, directly as a result of caregiving activities. The Reality of Caregiver Burnout Caregiver burnout and fatigue are very real.  Many parents struggle through this overwhelming […]

“The Best Respites are Intentional, Regular and Adequate in Length”

Back in April, I published results of a survey among parents in the autism community. 74% of the respondents stated that they were unhappy with services. 90% of the unhappy parents stated they did not have access to respite services. 26% of parents were happy with services, but 75% of the happy parents stated that […]

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